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Top tips for treatment

In addition to taking VIJOICE as prescribed, the following tips can help ensure you feel confident and prepared throughout your treatment journey:

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Prepare for your appointments

  • Jot down appropriate questions to ask your doctor

  • Communicate with your doctor if medication side effects are bothering you
     

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Take notes during appointments

  • Bring a notebook or journal with you so you don’t have to rely on remembering every important detail

  • Writing things down will allow you to review important information after the appointment when you are back home

     

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Check for refills

  • When getting medication, check to see how many refills you have left

  • Set up reminders on your phone that notify you when you will be running low on medication
     

Types of health care teams

PIK3CA-Related Overgrowth Spectrum, or PROS, care teams are as unique as the conditions they treat. Depending on your situation, you may be treated in a Vascular Anomalies Center and/or by individual doctors.

  • Vascular Anomalies Center is made up of multiple types of doctors, called a multidisciplinary team. These doctors collaborate and communicate together to treat and manage many parts of your PROS condition. The goal of this team is to provide you with the most comprehensive care possible

  • You may also see individual doctors, like a family pediatrician or internist, to manage the diverse features of your PROS condition. Sometimes, these doctors are not connected with a multidisciplinary team, so you might see them in a one-on-one setting

Make sure to discuss with your doctor or health care team what you both hope to achieve with VIJOICE treatment. Learn more about the kinds of specialists you may work with throughout your journey with VIJOICE.

Find a multidisciplinary team

The International Society for the Study of Vascular Anomalies (ISSVA) has created a list of multidisciplinary teams that treat vascular anomalies, which are common in PROS conditions. ISSVA believes that a team environment is the best setting for managing the complex problems that arise when treating vascular anomalies.

To view the list of multidisciplinary care teams, visit https://www.issva.org/resources/multidisciplinary-teams .